Hi. My name is Samantha. I am 18 years old and I have Ulcerative Colitis. I was diagnosed in the month of October. I will tell you how it went…
So I have never been to a hospital for anything serious like maybe a cold or a sore throat but never so severe. So we went to the children’s hospital and we let them know that I have been going to the bathroom A LOT and my stool wasn’t formed and sometimes there was even blood. Everything I would eat, I would go straight to the bathroom. It was weird because sometimes I would even have to go to in school and in school I usually just pee. Well, the doctor took a blood test and they let us know that something in my body was swollen. Then the doctor said the words “We are going to have to admit you.” Mind you, I have never been admitted into any hospital ever so I was like “what does that even mean?”
Then we had to wait until they would set up a room for us, they put an iv on my hand and put saltine water (something like that) and I was checked out by a gastroenterologist, the next day I had a colonoscopy. Then that afternoon, I was diagnosed with Ulcerative Colitis. I had no idea what it was and I didn’t even want to know what it was. A nutritionist came in later and said I have to avoid anything fried and spicy. Then I thought well I can’t think of many things that are fried… But then I started thinking chicken nuggets, french fries, chicken sandwich so pretty much all fast food. Ha. I wanted to cry.
It has been 10 months since my diagnose and it has been alright. I have had my ups and downs. Thankfully, right now I am by the up part. I have not been FULLY in remission. I already had my worst down. It was in December, it got so bad I lost a lot of weight because I would be constantly in the bathroom. I would lose lots of blood too. It got to a point where I was anemic and before even when I was diagnosed the nurses would say “Wow, she has a higher hemoglobin than me.” It went all the way down from 14 to 7. I was so weak, I even fainted twice in the hospital and I have never ever fainted in my life. The doctor said I need a blood transfusion. It helped so much like I was back to my old self. Before, the transfusion I was given remicade and that is my best friend because it has helped me through my best and worst moments truly.
It has been rough but I’m hanging in there. I follow a very strict diet. I can control myself around pizza and burgers.. Even though sometimes I just want to take a bite.. But I think twice “is one bite worth going to the hospital?” and honestly it is not even worth it. I made this blog because I feel like all of us with UC can help each other out and hopefully vice versa.